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Monthly Archives: May 2019
My doctors visit was another let down again. Am I asking too much to be heard, to be supported? Fibromyalgia even though gaining more understanding, is vastly misunderstood and by most doctors not accepted. My family doctor at my request … Continue reading
How desperately I want listen to this snail and do things at my own pace. Is it really okay? Although I give myself permission to take my time, plan my day, schedule my breaks and break down what tasks I … Continue reading
I don’t know if you’ve had the chance to read the book “Chronic Fatigue Syndrome and Myalgic Encephalitis; It’s Mitochondria not Hypochondria” by Dr. Sarah Myhill This book has been a game changer for me. I’m a Knowledge Is Power … Continue reading
“Regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic) This is the definition of self love. It’s a journey to figure out what that means for you and how you get there. I’m … Continue reading
I’m thankful to be in the CCDP program at Woman’s hospital. I had my final follow up with Physio and realize I have not been implementing the changes I need. She followed up on our last appointment in January about … Continue reading
In some ways broken in other ways fiercely strong. To live this life in all that we deal with shows how incredibly resilient we are. No one with chronic illness chooses this life and we wouldn’t wish it on our … Continue reading
These are my friends. Been waking up with horrible knee pain during the night. It’s so bad I can’t even straighten my leg. I don’t know what’s changed. 😥 I always try and find an alternative to manage my pain. … Continue reading
I do have the ability to decide each day how I will choose to feel in my moments. It has to be okay to say today I’m just going to accept and be in my sadness and allow myself to … Continue reading
I know I have a disability, I get they call it chronic for a reason. What I realize is I have not fully accepted, come to terms with and grieved properly in this process.